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Community testing practices for autism within the autism and developmental disabilities monitoring network
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7 2024
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Source: Paediatr Perinat Epidemiol. 38(5):426-431
Details:
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Alternative Title:Paediatr Perinat Epidemiol
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Personal Author:
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Description:Background:
No data exist at the population level on what tests are used to aid in the diagnosis of autism spectrum disorder in community practice.
Objectives:
To describe autism spectrum disorder testing practices to inform autism spectrum disorder identification efforts.
Methods:
Data are from the Autism and Developmental Disabilities Monitoring Network, a multi-site surveillance system reporting prevalence estimates and characteristics of 8-year-old children with autism spectrum disorder. Percentages of children with autism spectrum disorder who received any autism spectrum disorder test or a ‘gold standard’ test were calculated by site, sex, race, median household income, and intellectual ability status. Risk ratios were calculated to compare group differences.
Results:
Of 5058 8-year-old children with autism spectrum disorder across 11 sites, 3236 (64.0%) had a record of any autism spectrum disorder test and 2136 (42.2%) had a ‘gold standard’ ADOS or ADI-R test. Overall, 115 children (2.3%) had both the ADOS and ADI-R in their records. Differences persisted across race, median household income, and intellectual ability status. Asian/Pacific Islander children had the highest percent receiving any ASD test (71.8%; other groups range: 57.4–66.0%) and White children had the highest percent receiving ‘gold standard’ tests (46.4%; other groups range: 35.6–43.2%). Children in low-income neighbourhoods had a lower percent of any test (62.5%) and ‘gold standard’ tests (39.4%) compared to medium (70.2% and 47.5%, respectively) and high (69.6% and 46.8%, respectively) income neighbourhoods. Children with intellectual disability had a lower percent of any ASD test (81.7%) and ‘gold standard’ tests (52.6%) compared to children without intellectual disability (84.0% and 57.6%, respectively).
Conclusions:
Autism spectrum disorder testing practices vary widely by site and differ by race and presence of co-occurring intellectual disability, suggesting opportunities to standardise and/or improve autism spectrum disorder identification practices.
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Source:
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Pubmed ID:38531639
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Pubmed Central ID:PMC11262993
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Volume:38
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Issue:5
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Supporting Files:No Additional Files